Only one percent of all funding from the National Institute of Health is distributed toward pediatric research, which means that less than one cent per dollar is able to be donated to this specific cause. Independent donations and fundraisers are fundamental in impacting the future of congenital heart defects.
Not only is funding important, but awareness can help encourage people to become an organ donor, or to make blood donations whenever possible. Every three seconds in the United States, someone requires donated blood. Often these are patients undergoing heart surgeries, including children born with congenital heart defects.
It is also important for the families of a child suffering with a congenital heart defect to know that they have support. Whether the outcome is blessedly resolved easily, or sorrowful, each family has a unique but common struggle.
It has been especially important for us here at Cathy's Creations to encourage parents to feel loved and supported through their difficulties because we are aware of, and friends with, so many people whose children are struggling or have lost a difficult battle with congenital heart defects.
Among them is an infant named Emily, who lost her battle at the painfully short age of only ten days old. Born in May 2010, Emily was diagnosed with a heart murmur. At two days old, during a routine exam on the murmur, it was discovered that Emily suffered from HLHS, or Hypoplastic Left Heart Syndrome, a condition in which the left side of the heart stops developing early in the pregnancy, sometime between seven and twelve weeks gestation. Desperate measures were taken to save her life, but her heart could not handle the stress. At just over a week old, Emily passed away. Emily's Heart Bracelet, and more details of her amazing story, are available on our website.
Chloe, born in 2004, shares a similar and heartbreaking story. Born with the same devastating condition, Chloe also lost her life despite a team of doctors prepared to assist in any way possible. Her parents have since created the Chloe Duyck Memorial Fund, which promotes awareness for CHD and also helps to raise money in order to provide funding for research in pediatric congenital heart defects.
In order to promote awareness of CHD, and to help this extremely under-funded cause, we would like to ask you to participate in a donation-based random drawing for our CHD Awareness Bracelet:
(This bracelet is available for purchase with proceeds to be donated to the same cause that will be supported by this contest.)
In order to enter to win, we ask that you make a donation in any amount you are comfortable with, whether it be a dollar or significantly more, to this Paypal address: firstname.lastname@example.org. In order to achieve as large of an impact as possible, and to give everyone a chance to contribute to this worthwhile cause, we are running this contest for the month of February and will draw a winner on March 1, 2012.
Donations that exceed $50 will receive two entries into the contest.
All of the money raised will support Hope 4 Tiny Hearts, the Chloe Duyck Memorial Fund. This is our second year participating in a fund raising activity for this cause, and last year we raised $2500.00! This amount was donated in full to the Cardiopulmonary Research Science and Technology Institute.
Our goal this year is to meet or exceed this amount.
Please consider a charitable donation for this worthy cause. While we are drawing a bracelet winner on March 1st, we are aware that anyone and everyone who can spread the word, share this blog, and donate anything from a moment of their time, to dollar from their pocket, are the true winners. We appreciate the love, generosity, and unconditional support from everyone willing to participate.
In the comments section, we invite you to share a story or name of someone you know who is affected by a congenital heart disease. Please also feel free to share if you have donated your money with this person in mind.